4 A’s Sisters Lupus Club April 2024 Spotlights
Janay Townes, born and raised in Philadelphia, PA, and later moved to Carney’s Point, NJ, when she was fourteen. Janay was diagnosed with Systemic Lupus Erythematosus kidney nephritis stage four in 2004, and she was only fifteen years old.
Not knowing that lupus causes a lot of underlying illnesses, throughout the years, she has been diagnosed with Rheumatoid Arthritis, Avascular Necrosis, Irritable Bowel Syndrome (IBS), Asthma, Anemia, Idiopathic Thrombocytopenic Purpura (ITP), Fibromyalgia, Depression/Anxiety, High Blood Pressure, Sleep Apnea, Severe Insomnia, Raynaud’s Syndrome, and severe Migraines.
She has had numerous surgeries and procedures such as Bilateral Hip Core Decompression, Left Hip Replacement, Right Shoulder Replacement, Gallbladder removal, Appendix removal, several Colonoscopies/Endoscopies, and removal of Cancer Cells, and soon will have her Right Hip Replaced.
She has been on every lupus medication/treatment, including multiple rounds of chemotherapy, blood transfusions, platelet transfusions, plasmapheresis, losing all her teeth, and being in full menopause by age thirty.
With all that she has going on with her many illnesses, she has remained a humble lupus warrior and is still standing despite what she has been through. Janay still has good and bad days, but no matter what, she wakes up every morning ready to defeat lupus and whatever else comes her way.
Having lupus is 365 days, 24/7 job, with NO days off. Janay started LupiesUnite (Founder) so people with lupus can have a voice and be heard. Many people are still ignorant about lupus. If only they knew what people with lupus go through daily, they would understand why lupus survivors are so vocal about Lupus Awareness.
Janay may have lupus, but lupus does not have her. Lupus will not bring Janay down. No matter how many times she may fall, she will get right back up and continue to fight, spread awareness, and educate the world about lupus.” Let’s show some love for Janay!